Tag: Barth syndrome foundation

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What is the charity for Barth syndrome? The Barth Syndrome Foundation Explained

Sep 22, 2025 •

4 min read

Founded in 2000, the Barth Syndrome Foundation (BSF) is the world's only volunteer organization dedicated to saving lives through education, advances in treatment, and finding a cure for this multi-system genetic disorder. This charity for Barth syndrome is a global hub of resources and support for affected families and individuals.