Understanding the Patient Experience: How do people with EDS feel?
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4 min read
While many people have never heard of it, an estimated 1 in 5,000 individuals are affected by Ehlers-Danlos syndrome (EDS), and the hypermobile type (hEDS) is seen with increasing frequency. For those living with this genetic connective tissue disorder, the question 'How do people with EDS feel?' reveals a complex reality extending far beyond simple joint flexibility.
