Tag: Heds

While Ehlers-Danlos syndrome (EDS) isn't typically considered a linear degenerative disease, symptoms can intensify unexpectedly due to flare-ups. It is this sudden and dramatic worsening of symptoms that can make it feel as if the condition is progressing rapidly.

According to one 2023 study, 94.4% of patients diagnosed with hypermobile Ehlers-Danlos Syndrome (hEDS) had previously been misdiagnosed with a psychiatric illness by a non-specialist. This staggering statistic highlights the complex issues contributing to **why EDS is so controversial**, often pitting patient experience against medical skepticism.

Affecting approximately 1 in 5,000 individuals, Ehlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders that primarily affects the skin, joints, and blood vessel walls. The question of whether this condition is a degenerative disorder is complex, as its impact on the body is often progressive, with symptoms evolving and potentially worsening over a person's lifetime.

Over 75% of individuals with hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD) experience severe, chronic fatigue. This profound exhaustion is more than just feeling tired; it is a complex and debilitating symptom, so understanding what helps Ehlers Danlos fatigue is crucial for improving daily function and quality of life.

Over 90% of patients with hypermobile Ehlers-Danlos syndrome (hEDS) were misdiagnosed with psychiatric illnesses prior to their correct diagnosis, highlighting a critical medical knowledge gap. For countless patients, this raises a pressing question: **Why don't doctors diagnose Ehlers-Danlos?**

An estimated 24% to 75% of women with Ehlers-Danlos Syndrome (EDS) report experiencing pelvic organ prolapse. Understanding **what type of EDS causes prolapse** is crucial for managing symptoms and finding effective, tailored treatment for this common complication.

While the impact of Ehlers-Danlos syndrome varies widely, the life expectancy for individuals with the most common types, such as hypermobile EDS (hEDS), is not decreased. However, the outlook is significantly different for those with rarer, more severe forms, particularly vascular EDS (vEDS), where serious complications can shorten life expectancy. Understanding this key distinction is essential for patients, families, and healthcare providers.

According to the Ehlers-Danlos Society, there are several types of Ehlers-Danlos Syndromes, but hypermobile Ehlers-Danlos Syndrome (hEDS) is the most common form. For individuals with hEDS, the condition often progresses through three general stages: the hypermobility phase, the pain phase, and the stiffness phase, which we will explore in detail.

Did you know that an estimated 90% of people with Ehlers-Danlos Syndromes (EDS) report experiencing chronic pain? While joint hypermobility is a defining feature, many patients experience a wide range of bizarre and lesser-known symptoms that can be challenging to understand. So, what are the odd symptoms of EDS?

Affecting connective tissues throughout the body, the Ehlers-Danlos syndromes (EDS) are a group of genetic disorders that can present with a wide range of symptoms. Understanding **what type of doctor diagnoses Ehlers-Danlos** is the first crucial step for individuals seeking answers and a clear path toward effective management.