Tag: Hereditary disorders

While the impact of Ehlers-Danlos syndrome varies widely, the life expectancy for individuals with the most common types, such as hypermobile EDS (hEDS), is not decreased. However, the outlook is significantly different for those with rarer, more severe forms, particularly vascular EDS (vEDS), where serious complications can shorten life expectancy. Understanding this key distinction is essential for patients, families, and healthcare providers.

An estimated 1 in 100 million people worldwide suffer from congenital insensitivity to pain (CIP), a rare genetic disorder where an individual is born unable to feel physical pain. This extraordinary condition raises a critical question: Which disease has no pain, and what are the surprising dangers of not experiencing this vital bodily sensation?