Tag: Nord

An estimated 30 million Americans are affected by a rare disease, a condition affecting fewer than 200,000 people in the U.S. While providing a single comprehensive list is challenging, major databases like NORD and Orphanet catalog thousands of these conditions. The following guide provides a detailed overview of what is the list of rare diseases, explaining their types, and where to find authoritative information.

With approximately 7,000 to 10,000 rare diseases identified, the number that have a truly curative treatment is surprisingly small. This poses a critical question for millions of patients and their families: **How many rare diseases have cures?**

According to the National Institutes of Health, over 30 million Americans are living with a rare disease, yet funding for research often lags significantly behind more common conditions. A rare disease Foundation Grant is a crucial source of support, offering financial aid for research, patient assistance, and educational initiatives within the rare disease community.