Tag: Undiagnosed illness

According to the NIH, over 7,000 rare conditions exist, with many of those affected spending years searching for answers to their perplexing symptoms. Knowing where to turn when no one can diagnose you can be the crucial step toward finding clarity and a path forward.

It's a common medical misconception that illness must involve a fever; however, many illnesses, including viral and bacterial infections, do not always present with a temperature elevation. It can be confusing and frustrating to feel so bad but I don't have a fever. This guide explores the various causes behind feeling sick without a high temperature.

According to the National Human Genome Research Institute, there are over 6,800 identified rare diseases, collectively affecting an estimated 25 to 30 million Americans. This sheds light on the complex question of which disease is not common and highlights the collective impact of these individual, rare conditions.

According to the National Institutes of Health, a rare disease affects fewer than 200,000 people in the U.S., but there are over 7,000 such conditions, leaving many to wonder, 'What is it called when you don't have a diagnosis?'. The answer involves several distinct medical terms that describe the state of having a condition without a confirmed cause. Navigating this medical uncertainty, often referred to as 'medical limbo,' can be a deeply challenging experience for patients and their families.

According to a 2025 report from the National Institute of Neurological Disorders and Stroke, undiagnosed diseases affect a significant portion of the population, often leading to years of uncertainty. This highlights why it is so important to understand what does "not diagnosed" mean.

According to a study published in the *Journal of Patient Safety*, diagnostic errors are a major public health concern, affecting millions of patients annually. Feeling dismissed or lost in the medical system is a distressing reality for many, and you may find yourself wondering: **Why can't doctors figure out what is wrong with me?** This comprehensive guide will help you understand the diagnostic challenges and empower you to advocate for your own health.

An estimated 30 million Americans experience significant health problems that defy diagnosis. Navigating a world of unexplained symptoms can be a frustrating and emotionally draining experience, and knowing **what happens if you don't get diagnosed** is crucial for protecting your well-being.

While most fevers subside within a few days, a fever that doesn't resolve is a signal that requires attention from a healthcare professional. This persistent symptom can be a perplexing medical puzzle, indicating an underlying issue that needs careful investigation to uncover its root cause.

Estimates suggest a large portion of people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) remain undiagnosed, often for years. So, **how hard is it to get diagnosed with CFS?** The diagnostic journey is notoriously difficult due to multiple intersecting factors.

According to the National Institutes of Health, the average time to get a diagnosis for a rare disease is nearly five years. This long and difficult process is often called the 'diagnostic odyssey,' which is precisely **what happens if you have an unknown disease** for an extended period of time.