What is it called when you don't have a diagnosis?: Exploring undiagnosed conditions
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5 min read
According to the National Institutes of Health, a rare disease affects fewer than 200,000 people in the U.S., but there are over 7,000 such conditions, leaving many to wonder, 'What is it called when you don't have a diagnosis?'. The answer involves several distinct medical terms that describe the state of having a condition without a confirmed cause. Navigating this medical uncertainty, often referred to as 'medical limbo,' can be a deeply challenging experience for patients and their families.